Dominique POUGHEON BERTRAND
PhD Santé Publique, Chargée de recherche et d’enseignement
Dominique Pougheon Bertrand is developing research in the field of rare diseases, and more specifically cystic fibrosis, on patient partnership in quality and safety approaches to care pathways, on collecting and taking into account patient experience to improve care and health pathways, and on innovative practices promoting patient empowerment and participation in their care, such as the integration of connected objects in patient care and health.
Activités récentes : Teaching part :
Coordinator of the Master 2 in Healthcare Quality and Safety
Coordinator of the Master 2 in Care Quality and Safety as part of the partnership between USPN and IFCS AP-HP
Lecturer in several teaching units of the Master1, DE IPA and DFGSM courses on the themes of patient partnership and improving the quality and safety of care pathways.
Research part:
As part of two successive grants obtained from the IReSP (2019) and the ANR (SAPS-RP1-RA 2022), I am coordinating a research program on characterizing the patient experience of health and life paths with cystic fibrosis, leading to the definition of a conceptual framework and questionnaires for collecting patient experience, and their testing in a selection of study sites, resource and skills centers and patient associations, to assess their feasibility and usefulness in improving the quality of care and patient experience.
Publications récentes : 1. Belgodère L, Pougheon Bertrand D, Jaulent MC, et al. Patient and public involvement in the benefit–risk assessment and decision concerning health products: position of the Scientific Advisory Board of the French National Agency for Medicines and Health Products Safety (ANSM). BMJ Global Health 2023;8:e011966. doi:10.1136/bmjgh-2023-011966
2. D. Pougheon Bertrand, A. Fanchini, P. Lombrail, G. Rault, A. Chansard, N. Le Breton, C. Frenod, F. Milon, C. Heymes‑Royer, D. Segretain, M. Silber, S. Therouanne, J. Haesebaert, C. Llerena, P. Micheland and Q. Reynaud. A conceptual framework to develop a patient-reported questionnaire on the cystic fibrosis care pathway in France: the ExPaParM collaborative study. https://ojrd.biomedcentral.com/articles/10.1186/s13023-023-02640-6.
3. Morsa M, Perrin A, David V, Rault G, Le Roux E, Alberti C, Gagnayre R, Pougheon Bertrand D. Does the use of connected devices contribute to the empowerment of patients with cystic fibrosis for the management of their pulmonary exacerbations? A grounded theory from the MucoExocet study. JMIR Formative Research Accepted 25 oct 2022. doi: 10.2196/38064
4. M Benbouaziz, R Cohen, JB Senegas, M Rousselle, G Guerni, A Cheik Mohamed, J Robert, JM Catheline, G Des Guetz and D Pougheon Bertrand. Préparation diététique à la chirurgie bariatrique par visioconférences pendant la crise sanitaire Covid-19 et perspectives. Educ Ther Patient/Ther Patient Educ, 14 2 (2022) 20202. DOI: https://doi.org/10.1051/tpe/2022009
5. D. Pougheon Bertrand, A. Fanchini, P. Lombrail, G. Rault, A. Chansard, N. Le Breton, C. Frenod, F. Milon, C. Heymes‑Royer, D. Segretain, M. Silber, S. Therouanne, J. Haesebaert, C. Llerena, P. Michel and Q. Reynaud. Collaborative research protocol to define patient‑reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study. Orphanet Journal of Rare Diseases (2022). https://doi.org/10.1186/s13023-022-02204-0
Email :
ORCIDResumePublication 1Publication 2Publication 3Publication 4Publication 5