"Je est un autre ... Stéphane has cystic fibrosis and both lungs have been transplanted".
08/27/2024
Documentary by François HAVEZ "Je est un autre ... Stéphane with cystic fibrosis and a double-lung transplant".
This is the ExPaParM research project in which LEPS is one of the players with Dominique POUGHEON-BERTRAND.
Link to the article
[Director's summary]
"I met Stéphane during the "ExPaParM" meetings at the Vaincre la mucoviscidose headquarters.
I've been filming a group of researchers, patients and healthcare professionals for several months. This ExPaParM-ACTION research project aims to test a questionnaire that explores patients' experiences of care, health and life as part of the Parcours Mucoviscidose Patient Experience.
I suggested that the research group create a series of short films featuring portraits of patient co-researchers.
I suggested to Stéphane that he take his portrait at home, in Dax.
He was immediately delighted when I agreed to come into his world for several days, to make an "out of town" film. An ideal environment for a shoot in complete confidence, favoring my work on intimacy.
Would you like to find out more about the study?
Follow this link: https://expaparm.muco-cftr.fr/
#vaincrelamucoviscidose #LaboratoireEducationsetPromotiondelaSantéUR3412 #AllResearchers #ined and the study field teams (Versailles, Lyon, Nantes and the Pôle Santé de Vaincre la Mucoviscidose).
#mucoviscidose #research #health #disease"